Friday, August 23, 2013

When Did I Acquire Fibromyalgia?


I have been working on me, making me a priority for many years.  I have succeeded at this more and more.  But as I look back, I can see that it has been a very hard and a long process for me.  Even the attempts I have made at it in the past barely put a dent in the degree to which I have been "outer focused."  I have needed much more of "me as a Top Priority" than I was able to do.  Boy, it surely does not come easy to me, at all.  Operating in this manner is not even on my radar at times!  But when my body acts up, recoiling in unbelievable pain, well, it is pretty darned hard to ignore!

Sometimes it feels like, "BAM!"  Pain all over the place just swoops in my body--seemingly out of nowhere, and it lays me low!  It is very peculiar how pain in me sometimes manifests. 

I wake up every, single morning, in mega pain and have for many years.  I thought this was just part of getting older.  But I have been like this since I was about 25 years old.  It has just gotten progressively more intense and it lasts longer and longer before the stiffness and pain I acquire while lying in bed during the night moves on.  Eventually there grew to be days, then weeks, and then months that this pain hung around, sapping my energy and making me very crabby!

I thought everybody felt these things.

Apparently this is not so.  At least not at 25 years of age.  Maybe at 57, the age I am now, that makes more sense!  

I am now certain that I have had Fibromyalgia since right after the second spinal surgery I had in 2003.  I just never got over that surgery.  I probably had bouts of it as far back as I can remember, even in adolescence.  

But it came to visit a few years back and it has never left.

I am currently reading a book by Dr. David Edelberg called "Healing Fibromyalgia." 

http://shop.wholehealthchicago.com/books-and-cds/healing-fibromyalgia.html 

What Dr. Edelberg says makes a great deal of sense to me.  He believes that Fibromyalgia is a low serotonin affliction--and that it is caused by way too much stress for way too long.

I am not certain that it is only stress that causes it.  I am also leaning towards some genetic factors--which Dr. Edelberg also mentions, and I feel there are some other factors, yet undiscovered or acknowledged.

At any rate, Fibromyalgia is a huge challenge.


I think I carry 'holding' energy in my body--by default.  I think it is the primary way that I go through my life.  From my earliest memories, I braced myself, put on my Warrior Armor, pulled up my socks, pinned on a smile and trudged through whatever crisis was at hand.  There always seemed to be stress and disorder. 

I have always been hard at work, making lemonade out of lemons.  I thought I was doing a great job of it, too!  But, this kind of stress has had far reaching and long term consequences for me.  Still, I firmly believe that there is a great gift somewhere in the midst of all difficulties.  I have found many already in what I have experienced with Fibromyalgia.  I am hanging on for others to manifest.  I know they are there!




I firmly believe what Melanie Koulouris says in the quip of hers I have included here.  In the meantime, I am putting down my sword, taking off my armor and sitting with an open heart and a willing attitude to continue on.  I am hanging on for the ride, Trusting that all is unfolding in the most beneficial and highest order for me--no matter what it sometimes looks like!  It always works out wonderfully, eventually!

Doing my very best to stay positive is hard, but really helps a bunch.  Sometimes that means getting support from others.  Sometimes it means staying open to things I would never have ever considered.  Nothing is off the plate when dealing with difficulties as challenging as Fibromyalgia. 

Love, Hugs and Blessings,
Barbara

© Copyright 2009-2013, Transformation Of A Mystic | Barbara F. Manning. 
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2 comments:

  1. I shared this much needed post and wanted to share the response...
    Oh cousin...cousin, THANK YOU, THANK YOU for posting this. Sometimes it's so difficult because to others you "appear normally healthy" if there is such a thing, I too believe the inset was in adolescence, as a early as I can remember and I have always had a vivid memory from childhood, I remember not ever feeling completely healthy, as a very young child as early as I can remember, my mother (who was diagnosed w/crippling arthritis at age 5, began to cripple at 11) always called me tiscica (sp?- pronounced Te-cee-ca) which as a child I had assumed it was a lovingly sweet nickname, only to learn later in life it was was actually something entirely different, the true meaning is "sickly". I went through life loving when she called out Tiscica. In my early 20's I recall going through many illnesses, raising 2 children, working and going to school. I always felt exhausted, and hated that I didn't have that Gump that others had, just the same, I kept on just making the best life I could for my children and myself. In January of 1991, i had to have a hysterectomy. it just seemed like i couldnt get better, on April 3, 1991 my father who I loved with all my heart passed away suddenly and unexpectantly, after remaining so exhausted and hurting unbearably physically and emotionally, my Health Insurance at work changed, I went to see this Doctor, she was quite young, I remember thinking this probably will be a waste of time, (prior to this I had seen many specialist that my previous Dr had referred me too), to my surprise and delight she was VERY, VERY thorough, she tested me for anything and everything. She told me first off without a doubt that I was depressed which we both knew without saying, however my pain, illness and exhaustion were much deeper than that, so after a couple of months of multiple tests, x-rays, a MRI and retesting it was determined that I not only had arthritis (which I was aware of) but that I also had fibromyalgia. Fortunately this very young Indian doctor, Dr. Glayol Sahba turned out to be a very thorough well informed diligent Doctor. And, yes she did tell me at that time that it had been discovered that in most every case fibromyalgia is something that your born with genetically in your muscle and skin tissue. However it generally will not affect you until your mid 20's to early 30's. I too am 57, or will be in a couple of weeks. Again thank you for sharing this invaluable information. And thank you, thank you Barbara Manning!

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  2. Thank you so much for sharing this, Peg! I deeply relate to the message! Many of us Fibro Folks can relate, I am sure!

    Support from many areas is crucial to managing Fibromyalgia. We all can help support each other as we find our way through this challenging affliction. We do and we will continue to find our way. I am sure of it!

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